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Category: Familial Hypercholesterolemia

FH Foundation Initiative Helps “FIND FH”

Officially launched in January 2014 by the FH Foundation, FIND FH® is a specific data mining initiative that uses multiple types of healthcare datasets to identify probable individuals with familial hypercholesterolemia, or FH, and provides a resource for healthcare professionals to encourage screening.

The initiative consists of three elements, the first of which is a lab and claims algorithm based on a database that the FH Foundation developed of more than 89 million Americans with cardiovascular disease. An EHR (electronic health records) algorithm and HCP/individual engagement comprise the second and third elements of the FIND FH® initiative, respectively. Read more

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Familial Hypercholesterolemia Awareness Day is September 24, 2015

Familial hypercholesterolemia (FH) affects up to 1.3 million people in the United States, of whom 90% have not been properly diagnosed or treated. Many individuals with FH have no visible symptoms, and untreated, are at an excessively high risk of having an early heart attack—20 times higher. Early diagnosis and treatment are crucial to change these statistics.

The FH Foundation is a patient-centered nonprofit organization dedicated to education, advocacy, and research of all forms of FH. Their mission is to raise awareness and save lives by increasing the rate of early diagnosis and encouraging proactive treatment. The FH Awareness Tweet-a-Thon, which will focus on the signs, symptoms, and risks of FH, will take place Thursday, September 24 at 5 pm PST, 7 pm CST, and 8 pm EST. Join the conversation at: https.//twitter.com/TheFHFoundation. #KnowFH. Also, plan to join us at the 10th Annual CMHC #CMHC 2015 on October 21-24 and visit our booth at the CMHC Exhibitor Showcase to speak with representatives from the FH Foundation. Read more

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FH: Lifestyle, Luck, or Genetics?

View a Clinical Snapshot from Dr. Pamela Morris on the practical management of familial hypercholesterolemia (FH).

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Familial Hypercholesterolemia Awareness Day is Today

One Minute, One Family
It takes just 1 minute to share vital information that might save a family from early CVD.

“I first found out I had high cholesterol when I was in high school. Without having a name for it, I knew that it was something that I had inherited from my father’s side of the family. I have now accepted the fact that diet and exercise are not enough for what we have. Aggressive medical treatment is necessary.” — Catherine Davis Ahmed, FH Advocate, Director of Outreach, FH Foundation

“It wasn’t until I saw a lipid specialist about my kids that I actually learned about the disease I have. Now that I know what I am fighting against, I am learning everything I can about FH in order to guide my kids through this disease with early detection and appropriate treatment. My wish for them is a future without the intense surgeries that I have had, in order to save my life.”-Scott Radabaugh, Patient Advocate Read more

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